Patient information resources and support services

Resources listed here have been added with permission from organisations that responded to the 2011study into provision of health care information about melanoma: organisations.  If you would like your organisation to be listed here, along with any melanoma information or resources that can be utilised by consumers or health professionals, please contact the Melanoma Network on info@melanomanetwork.org.au with relevant details.

A link to a PDF document listing this same information is available here melanoma_network_website_information_resource.pdf melanoma_network_website_information_resource.pdf (274.43 KB).

Consumer Resources

Organisation

Printed

Online

Support Group

Helpline

Clinical Trials

Summary of resources and information

 

Australasian College of Dermatologists

 

www.dermcoll.asn.au

 

 

 

 

 

 

A-Z of skin has online patient information about moles & melanoma, skin cancer, sun protection and vitamin D

  • Skin Cancer. What Every Australian Should Know
  • Types of Skin Cancers
  • Treatment of Skin Cancers
  • How to Check Your Skin & Moles
  • Moles & Melanoma
  • Vitamin D - Risks and benefits of sun exposure

Brochures can be accessed by health professionals

 

 

Australia and New Zealand Melanoma Trials Group (ANZMTG)

 

www.anzmtg.org

 

 

 

 

 

 

ANZMTG are in the process of developing resources and initiatives to assist consumers in becoming active and informed representatives in the development of clinical trials.   

 

 

Australian Cancer Trials Online

 

www.australiancancertrials.gov.au

 

 

 

 

 

 

This is a free information service that displays the latest clinical trials in cancer care, including trials that are currently recruiting new participants. 

 

 

Cancer Australia

 

http://canceraustralia.nbocc.org.au/

 www.healthinsite.gov.au

 

 

 

 

 

 

Skin Cancer factsheet available online. Cancer Australia is an information partner for the HealthInsite website.  A Lymphoedema brochure is available from the quick links panel. 

 

 

Cancer Council NSW

 

www.cancercouncil.com.au

 

 

 

 

 

 

Numerous supports and informational formats for patients, carers, family and health professionals. Cancer Council helpline, cancer connections (online forum), peer support, telephone support group, general cancer support groups, set of seven brochures including Understanding Melanoma, Cancer Council information centres, understanding cancer program, living well after cancer program, cancer answers (online question and answer tool), clinical trials, services directory and Sydney based information library.

 

 

Cancer Institute NSW

 

www.cancerinstitute.org.au

 www.eviq.org.au

 www.darksideoftanning.com.au

 

 

 

 

 

 

Online information about skin cancer prevention and downloadable question prompt lists with questions to ask Medical and Radiation Oncologists, Surgeons, Haematologists and things to ask about complimentary therapies.  

 Factsheets about mood, stress , anger and depression.

 EviQ patient information database.

 The dark side of tanning website has factsheets on:

  • Melanoma
  • Sun Protection
  • Fake tans
  • Sunscreen
  • Vitamin D
  • UV Index

as well as online information about ways to protect your skin, early detection and posters from advertising campaigns.

 

 

Cancer Voices NSW

 

www.cancervoices.org.au

 

 

 

 

 

 

Cancer Voices NSW provides the independent voice of people affected by cancer in NSW, working to improve the cancer experience of the 40,000 people who are diagnosed with our disease each year.  Established in 2000, we focus on the areas of diagnosis, information, treatment, research, support, care and assistance. To achieve this we work in partnership with providers of these services, ensuring the patient perspective is heard, from planning to delivery.  Membership is free.

 

 

Melanoma Patients Australia (mpa)

 

www.melanomapatients.org

 

 

 

 

 

 

mpa offers a moderated online forum and support groups throughout Qld, NSW, VIC, ACT and SA

 

 

Melanoma Institute Australia

 

www.melanoma.org.au

 

 

 

 

 

 

The brochure, Melanoma: Early detection could save your life.  Online information about melanoma, causes, prevention, screening, detection, checking your skin, dermoscopy, biopsy, treatment, support groups and patient stories.

 

Coming attractions

Resources for Health Professionals

 

 

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